Government should make a deliberate effort towards compiling data for Persons with Albinism (PWA) while carrying out national census, the Speaker Rebecca Kadaga has said.
She said this will help in planning for the special needs of PWAs like healthcare and education.
“Even the local council leaders should make it their responsibility to know the number of persons with albinism in their areas so that we can plan for schools,” Kadaga said.
The Speaker made the call after a fundraising walk aimed at raising funds for the construction of a rehabilitation centre for PWAs.
The event on Monday, 20 January 2020 is part of the activities of the Parliament Week.
The event that was attended by Members of Parliament, representatives from various ministries, departments and agencies, private organisations, Non-Governmental Organizations as well as religious leaders saw Shs54 million raised.
The Speaker was also concerned about the continued taxation of sunscreen and other protective gear for the PWA even after Parliament scrapped the taxes.
The Government Chief Whip, Hon Ruth Nankabirwa pledged to be a goodwill ambassador in cabinet for policy related issues on PWA.
“The Speaker’s proposals on making the lives of persons with albinism better require policies and I will ensure that these policies are passed when they are presented in cabinet,” Nankabirwa said.
She applauded the Speaker for initiating the fundraising walk saying that addressing the plight of PWAs requires concerted efforts.